Deliverables

EUReMS is an EMSP project (2011-2014) on MS-data collection, analysis and dissemination. It is focused on key concepts such as epidemiology, long-term therapy outcome, health care and quality of life of poeple with multiple sclerosis.

Upon its successful conclusion at the end of 2014, EUReMS is able to present significant deliverables:

Recent

1) EUReMS has identified 20 MS registries across Europe; 13 of them signed data sharing agreements; 

2) On the basis of the data shared by the mentioned registries, four studies were produced by the leading scientists involved in the project. 

3) Two of the studies were exhibited in poster presentation form at the Joint Congress of America's and Europe's Committees for Treatment and Research on Multiple Sclerosis - ACTRIMS-ECTRIMS 2014. Find the poster presentations here.  

3) The EUReMS presentation flyer was revamped and updated, pending the release of the EUReMS Report, in September-October 2014. 

4) A report marking the conclusion of the project. 

More details available in News&Events

2011-2013

1) EUReMS Consensus Statement – presenting EUReMS’ mission, vision and overall strategy; it was adopted on the 14th of December 2011 by the EUReMS Consortium, following a consultation with the Scientific Advisory Board during the European Comittee for Treatment and Research in Multiple Sclerosis (ECTRIMS) Congress

2) EUReMS Data Mask - a core data set to help identify the areas of interest for scientists and also allow people with MS to provide data from their own perspective

3) Coverage in specialised media - article on the philosophy behind EUReMS, “Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe”

4) Coverage at ECTRIMS 2013 international conference - article on a MS database survey, “MS Registries in Europe - results of a systematic survey”

5) EUReMS Charter – informative document enabling the partners and data providers involved in the project to give their informed consent